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Raising funds for Mayer Rokitansky Kuster Hauser Syndrome (MRKH)

Raising funds for Mayer Rokitansky Kuster Hauser Syndrome (MRKH)

Louise Williams and Gareth Perry (pictured) took part in the British 10k London Run in July to raise funds for Mayer Rokitansky Kuster Hauser Syndrome(MRKH).  Louise is part of the Paediatric and Adolescent Gynaecology (PAG) team at UCLH and wanted the money that they raised from the run to help pay for an open day for friends and family of MRKH patients.  MRKH is a disorder that occurs in women and mainly affects the reproductive system.  It affects around 1 in 5,000 women.

The open day took place on the 10th August and Louise explained to us that the day was a great opportunity for patients to meet each other and learn more about their condition.  Louise received some lovely feedback about the day, one patient told her, 'The whole day was just fantastic, it was so good to get a chance to meet people and hear the talks.  It just felt like exactly what I needed.  Thank you for organising it all, I feel very supported by the work you guys do.'

The mother of a young patient told Louise the following, 'We both found the day so beneficial and very emotional! We are slightly exhausted but I am so pleased my daughter has found peer support.'